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I want you to read this book. I hope you find it as depressing and painful as I did.
The book is Every Note Played, by Lisa Genova. You may have read some of Genova’s previous books, particularly Still Alice,which leads you through the life of a woman as she chronicles her decline into dementia.
This book chronicles a similar decline, but into ALS -- Amyotrophic Lateral Sclerosis, often called Lou Gehrig’s Disease, or “what Stephen Hawking had.”
But where Still Alice led readers through the gradual loss of a university professor’s memory and reasoning, it stopped before Alzheimer’s Disease ended her life. It was sad, but not shattering.
Every Note Played pulls no such punches. It takes you through to the end, and beyond.
Categories: Sharp Edges
Tags: dying, death, Lisa Genova, books, ALS, Every Note Played, caregivers